Prof. Dr. Özden Hatırnaz Ng’s Speech Titled ‘Obstacles and Expectations of Rare Disease Patients and Their Families in Türkiye’.

Acıbadem University Faculty of Medicine Department of Medical Biology faculty member Prof. Dr. Özden Hatırnaz Ng's speech titled “Obstacles and Expectations of Rare Disease Patients and Their Families in Turkey” on Friday, 28 April 2023 at 13.30 as part of the Molecular Biology and Genetics Department Seminar series, can be viewed at Acıbadem University Kerem Aydınlar Campus in classroom C501 and online.

Within the scope of the speech, the study data published in "Frontiers in Public Health", one of the leading journals in the world, including the results of the survey with broad participation carried out during the ISTisNA - Istanbul Undiagnosed and Rare Diseases Solution Platform Project Project, will also be shared. The publication received high attention in a short time.

For further information on the subject you can follow the social media channels of @istisnaplatformu or visit the website istisna.org