İSTisNA Workshop and Training Programs

20/01/2023

Orphanet Nomenclature Training.

Within the scope of the EJP-RD Project supported by the European Union Horizon2020 program, the Orphanet Nomenclature Training, which was planned within the scope of İSTisNA Project training activities in cooperation with Orphanet-ACURARE, took place on 19-20 January 2023 at Acıbadem University.

Upcoming Workshops and Trainings

  • Studies on Health Economics for Rare Disease Patients
  • Rare Diseases/Orphan Drugs Clinical Research Course for Researchers
  • Strategies, Genomic Approaches and Data Analysis Course for Rare and Undiagnosed Diseases
  • Communication Skills and Advocacy Training for Rare Disease Patient Representatives and Advocates
  • Genetic Counseling Training in Rare Diseases for Healthcare Professionals
  • Biobank Use in Rare Diseases, Dissemination of Standards in Biobanks and Analytical Processes
  • Structuring and Sustainability Course of Non-Governmental Organizations Working on Rare Diseases
You can follow our planned trainings from the training announcements on the homepage and our social media accounts.