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Studies on rare diseases require interdisciplinary collaboration, as is recognized. This collaboration is not just in the research community. It affects a variety of social layers. Only a few of these layers include patients, patient family, numerous associations and non-governmental organizations, social scientists, healthcare professionals, social security institutions, political decision-makers, pharmaceutical companies, academics, etc.

In fact, it is probable to identify a natural effect in man and all he has created. This is how the blue morpho butterfly's myth, which we selected as our project's symbol, commenced a bit for us.